There is much debate about the cause. Most researchers agree that beta amyloid plaques in the brain are key factors. Genetics are also involved and there have been connections made to diet, vascular health, lifestyle habits and exposure to pollutants. Between the information on the disease, it’s possible causes and the different kinds of behaviors and progression that each patient might experience, it’s a lot to take in.
A research study undertaken at the University of British Columbia sought to simplify the process of getting good information. They knew that since 80% of people are known to go online for health information, there was a good chance some of that information would be of questionable quality. Neurology professor Julie Robillard, at the UBC Djavad Mowafaghian Centre for Brain Health and the National Core for Neuroethics and UBC undergrad student Tanya Feng chose 300 articles on the topic of Alzheimer’s prevention that they found by surfing hundreds of different websites.
Many of these articles contained very poor advice and were often merely sales pitches for products like computer games and dietary supplements. Approximately 1 in 5 of the sites promoted products for sale, which calls into question the information they provide about the disease. In a press release on the survey, Feng stated, “Many red flags were not specific to what they were saying, but rather how they were saying it. For example, using strong language like ‘cure’ or ‘guarantee’, promoting their own products, and relying on anecdotal evidence instead of empirical research is suggestive of poor-quality information in online dementia information.”
Robillard added, “The quality of online information about preventing Alzheimer’s disease ranges. The few websites offering high-quality information can be hard to distinguish from the many low-quality websites offering information that can be potentially harmful.” The team is developing a set of six questions in an easy to use online tool called QUEST to help people weed out the good information from the bad. Their research is published in the Journal of Alzheimer’s Disease. The video below explains what to look for when researching Alzheimer’s online.
Sources: National Institute on Aging, University of British Columbia, Journal of Alzheimer’s Disease